We are a volunteer-led collective of creatives and researchers from diverse disciplines and backgrounds, united by a shared commitment to addressing systemic and structural injustices related to endometriosis and the broader gender health gap.
Our expertise spans research, activism, policy making, photography, mixed media, community work and education [formal and non-formal], allowing us to approach these critical issues from multiple perspectives. We are always open to collaborations and partnerships, whether for artistic projects, research initiatives, or advocacy efforts.
Additionally, our members are available for freelance work in their own capacity.
If you’re interested in working together, we’d love to hear from you.
Allison Rich
co-founder
Allison Rich (she/her) is an organizer and artist who translates interdisciplinary ideas with films. She composes fragments of mixed media, centered in the ethos of DIY and ecofeminism, to explore modalities of knowledge sharing.
She leads and co-founded Endo Violence Collective. She manages our social media and co-edits Endo Violence Magazyn. She guided our book ‘endo violence: [co] defining endometriosis related injustices‘ as editor and writer.
Allison’s film about gendered medical equity and endometriosis visibility ‘Not Normal’ combines first person narration, iPhone recordings, paintings, and archive images to form 213 collages. Featured by Period Movement, Women’s Voices Now, Chroma Art Film Festival, and University of Leeds and Graz. She is an IN + ART resident exploring digital equity and climate loss.
Allison Directed the Earth Ethics Institute, co-founded the Environmental Health Network, and Chaired on the Climate Change Commission. She is certified in climate change and health communications from Yale and in Sustainable Development through University of Cambridge. She is from Miami, FL where she organized access to clean water for her community with Erin Brochovich
@endometriosishealthnetwork
HYSTERA / dr Alicja Pawluczuk
co-founder
HYSTERA, also known as Dr. Alicja Pawluczuk (she/her), is a multidisciplinary artist, researcher, and activist exploring digital inequalities, feminist technology, and socially engaged art, and alternative knowledge making . She is a disabled, neurodivergent Eastern European migrant whose work spans academia, community engagement, and creative intervention, amplifying marginalised voices impacted by chronic illness, gendered violence, and digital exclusion.
She is the author of She guided our book “endo violence: [co] defining endometriosis related injustices”
Currently a Research Fellow at Leeds University, she leads on the IN+ART Programme, DYWR.HUB, and endo violence and digital [in]nvisibility research project. She is the founder of Digital Beez, a participatory digital inclusion initiative, and co-founder of Endo Violence Collective, which challenges the systemic neglect of endometriosis and menstrual health through art and research. She is also the author behind the Endo Violence (publication due March 2025).
Dr Pawluczuk has an over a decade of an international researcher experience having worked with institutions such as the University of Liverpool, the United Nations University, USAID, the European Commission, and EU-EQUALS Coalition. Her work in these roles has focused on digital equity, youth participation, and gendered digital inclusion, contributing to global initiatives that address systemic digital inequalities. Her art has been exhibited internationally, with recent projects including The Unrequested (Notagallery, Berlin, 2025), Pain Unseen (Stockholm Museum of Women’s History, 2024)., Breaking the Silence (France, 2024). Beyond exhibitions, her research and writing explore digital censorship, feminist tech, and online visibility politics. She has an extensive list of formal and non-formal publications with recent contributions to publications such as The SAGE Encyclopedia of Education and Gender [2025] and Neurodiversity and Life-long Learning [2025].
http://www.alicjapawluczuk.com
http://www.hystera.online
Instagram: @hy_stera
Medium: @alicjapawluczuk
Rachael Jablo
Rachael Jablo (she/they) is a chronically ill, Jewish, queer Berlin-based American artist and educator who works with storytelling, photography, installation, and collage to discuss issues around illness, the body, grief, and gender. Her work has been seen recently in solo exhibitions at Graz’s Forum Stadtpark, and USC’s Hoyt Gallery, and in group exhibitions at the Torrance Museum in LA, and at the Bakery Art Gallery in Bordeaux. She has been featured in Ever-Emerging Magazine, on WNYC’s The Takeaway, and Slate, and is an active member of the EndoViolence Collective. She published her photographic monograph about chronic migraine, My days of losing words, with Kehrer Verlag in 2013. Her storytelling and collage project, The Hysteria Project, received a Neustart Kultur Grant for Innovative Arts from the German Government in 2021-2022. She is part of the EU-wide #ENDOs art and narrative medicine project running through 2025. She was the keynote speaker at the Endometriosis (R)Evolution narrative medicine conference at the University of Graz, Austria in May 2024.You can find her work at hysteriaproject.org and rjablo.com or @thehysteriaproject and @rljablo on instagram.
Alekszandra Rokvity
Alekszandra Rokvity (she/her) is a PhD candidate focused on health and medical humanities, working on endometriosis from a cultural and social perspective. She is currently leading the In/Visible Endometriosis: Menstruation, Menopause, and Narrative Medicine project at the University of Graz (CIRAC). Through this project, she has organized numerous science-to-public events, including a panel discussion between doctors, patients, and activists (Endometriosis: Art, Medicine, and Activism in Conversation), the Sick Lit literary series, and the international interdisciplinary conference Endometriosis (R)Evolution: Making the Invisible Visible. Outside of her academic work, Alekszandra is an avid activist raising awareness about endometriosis and medical sexism, a speaker, organizer, and lecturer. She’s particularly interested in patient narratives – both in text and visual formats.
Instagram: @rokvity @sick_storiez
Website: https://linktr.ee/rokvity
Angie Mashford-Scott
Angie Mashford-Scott (she/her) is the founder of endokind, an Australian counseling practice for those with endometriosis. Since the 18 year delay in getting her diagnosis, Angie has had multiple surgeries and serious post-surgical complications. Following her most recent surgery, she was rushed back into hospital and admitted to the Intensive Care Unit (ICU) with life-threatening sepsis. Like many endo patients, she questioned herself and the severity of her deteriorating condition and delayed going back into hospital, which almost cost her her life.
Alice Brunello Luise
Alice Brunello Luise (she/her) is an Italian photographer and mixed media creative researcher based in Berlin.Twice awarded first prize at Mondadori Premio Arte (Milan), she has collaborated with artist Iris Brosch in Venice, Rome, and Paris during major events such as the Venice Biennale of Art and Architecture and Open10 & Open17. Her work has been exhibited at Palazzo della Permanente (Milan), Galleria A+A (Venice), and in the 2023 group show Cut the Crab (Helsinki), curated by Riikka Fransila.
In 2024, she participated in exhibitions with BAAM Berlin, Pandora Gallery (Berlin), and venues in the UK and Norway, alongside a performance at Festival 48 Stunden Neukölln (Berlin). Her work was published in ENDO Violence Magazyn #2 (in collaboration with University of Leeds) and PhotoTrouvéeMagazine (NY).In 2025, she joined the “In Between” Artist Residency (Kulturschöpfer & Green Hill Gallery), followed by exhibitions A Room of Her Own (NOTAGALLERY) in March and Territorial Bodies (Bardo Projektraum) in April.
Ajiri Ayokunle
Ajiri Ayokunle (she/her) is a research enthusiast and advocate for endometriosis, women’s health, and menstrual wellbeing. With a robust interdisciplinary background in health research and data science, she specialises in the socio-psychological aspects of endometriosis, health equity, and digital mental health. Her research centres on exploring the lived experiences of individuals with endometriosis, particularly those in underserved communities, and developing innovative, policy-driven solutions to enhance healthcare outcomes.
Holding a bachelor’s degree in biotechnology and an MSc in Applied Artificial Intelligence and Data Analytics (Distinction) from the University of Bradford, Ajiri seamlessly integrates qualitative research methodologies with advanced data-driven approaches.
Her professional experience spans healthcare research, policy advisory, and community support, including her roles in research administration at the University of Leeds, Community Information Officer at the NHS, and Support Group Leader at Endometriosis UK. Furthermore, she is an active member of the African International Collaboration (AIC) Group, the Social Sciences Endometriosis Network (SEEN), and the Policy Research Unit in the Reproductive Health Independent Advisory Group (NIHR), further reinforcing her commitment to evidence-based advocacy.
Passionate about frugal innovation, Ajiri is interested in developing low-cost, high-impact solutions to improve healthcare access for underrepresented women. With extensive experience conducting ethnographic research, facilitating co-production workshops, and collaborating with marginalised communities globally, Ajiri is dedicated to advancing knowledge, shaping policies, and driving meaningful change in reproductive health. Her ambition is to become a leading professor in applied health research, pioneering technological innovations in the diagnosis and management of endometriosis.
Lauren Koff
Lauren Koff (she/her) is a disabled and chronically ill social entrepreneur and travel photographer with a passion for reproductive justice and endometriosis awareness. She dedicates her professional and personal energy to advancing health equity and community empowerment.
Lauren Koff serves as Secretary and on multiple committees for the Board of Directors of Emergency Medical Assistance (EMA) Abortion Fund. Lauren is also the co‑founder of Mind&Melody, Inc., a 501(c)(3) nonprofit launched in 2014. The organization brings interactive music programs to individuals with neurological impairments—impacting thousands through moments of connection and joy. She has experience in every aspect of non-profit management from Board leadership to grant writing to policy and holds an MBA. Her work at the intersection of businesses and nonprofits fuel her mission of innovation and social impact.
LinkedIn: https://www.linkedin.com/in/laurenkoff
Endo Violence Collective 